LGMD2A
Currently, no other database exists of individuals affected by calpainopathy. If you or a family member suffers from calpain-3 deficiency, you can register here. Also, an information leaflet is available in English.
Once registered, you will receive e-mail updates on research progress and clinical trial opportunities. No personally identifiable information will be shared with researchers without your prior consent. This is an international database open to patients living in all countries.